About
I am retired and live on the Sunshine Coast in Queensland. I enjoy pursuits like knitting and reading and regularly catching up with friends and family. I have 2 beautiful daughters and 2 gorgeous and entertaining grandchildren.
My IPF journey began in 2013 with an undiagnosed persistent cough. This worsened over time until I was finally sent for a chest X-ray and CT scan in 2017 which showed widespread fibrosis. A lung biopsy in November 2018 proved the diagnosis of IPF and I was able to start on Perfenidone. Several months later, I changed to Nintedanib.
I have been fortunate to be included in several trials over the past few years and the support and data that extends from these is very reassuring and has helped me to further understand my disease.
Being a member of the Consumer Advisory group allows me to reach out to other IPF patients and meet young researchers working on understanding IPF and its impact on sufferers. While everyone’s experience is unique, sharing our journey assists all of us to work together to improve outcomes and hopefully find a cure.