Patient Resources
These resources are provided to support people living with pulmonary fibrosis. They cover a wide range of topics including information on common medications, support for managing symptoms, lifestyle advice and more.
The entire list is provided below, but you can also sort by the type of resource using the left-hand menu.
- Partnering With Your Pulmonary Fibrosis Healthcare TeamSeptember 30, 2024
This webinar explores the role of healthcare professionals in managing pulmonary fibrosis and offers practical insights into care coordination, symptom management, and maintaining communication with specialists.
- Other Health Conditions and Pulmonary FibrosisSeptember 11, 2024
This fact sheet provides information on common comorbidities that people with pulmonary fibrosis may experience.
- What is Pulmonary Fibrosis/Interstitial Lung Disease? Disease Pathways and TreatmentsAugust 16, 2024
Dr Chris Zappala (Respiratory & Sleep Specialist) provides an in-depth overview of pulmonary fibrosis and interstitial lung disease.
- Managing Challenging SymptomsAugust 16, 2024
Associate Professor Natasha Smallwood delves into managing challenging symptoms associated with pulmonary fibrosis and interstitial lung disease.
- Exercise and Pulmonary FibrosisAugust 16, 2024
Associate Professor Lissa Spencer discusses the vital role of exercise in managing pulmonary fibrosis.
- Research and Latest Developments: What’s on the Horizon for Pulmonary FibrosisAugust 16, 2024
Professor Dan Chamber offers some insights on the latest research and developments in the field of pulmonary fibrosis and interstitial lung disease.
- Embracing Hope: Navigating Life with Pulmonary Fibrosis/Interstitial Lung Disease – Panel sessionAugust 16, 2024
A panel of clinicians and consumers on how they maintain hope while living with their lung condition, or what advice they provide to their patients on maintaining hope through the challenging times.
- Clinical Trials in Lung Fibrosis Fact SheetJuly 25, 2024
This fact sheet informs patients of the benefits of participating in a clinical trial and provides an understanding of the processes involved.
- Preventing and Managing Respiratory InfectionsJuly 25, 2024
This booklet for people living with pulmonary fibrosis provides a range of strategies to help prevent respiratory infections and manage them when they do occur. It offers information on common infections as well as their symptoms.
- Rituximab Fact SheetJuly 1, 2024
This fact sheet has been designed to help people living with pulmonary fibrosis to understand more about the immunosuppressant medication, Rituximab (MabThera, Ruxience, Riximyo, Truxima).
- Life with Pulmonary FibrosisJune 30, 2024
This booklet contains information for people who have been diagnosed with pulmonary fibrosis and their carers.
- Progressive Pulmonary FibrosisJune 7, 2024
In this webinar, a mixed panel of health professionals and consumers provide expert insights into what progressive pulmonary fibrosis (PPF) is, how to manage symptoms like cough and breathlessness, strategies to help improve quality of life, building up your exercise tolerance, understanding the benefits of palliative care, and more.
- Updates on Treatments for Pulmonary FibrosisMarch 22, 2024
In this webinar, Professor Dan Chambers provides an overview of the current treatment options for pulmonary fibrosis as well as an insight into the latest advancements and breakthroughs emerging from clinical trials, offering a glimpse into the promising future of pulmonary fibrosis treatments. Two consumers living with pulmonary fibrosis also share their lived experience and practical tips for navigating day-to-day life on treatments.
- Anti-fibrotic Treatments for Pulmonary FibrosisFebruary 1, 2024
This Anti-fibrotic Treatments for Pulmonary Fibrosis fact sheet provides an overview of pulmonary fibrosis medications, their role in pulmonary fibrosis, common side effects and how to manage them.
- Managing Progression in Pulmonary FibrosisFebruary 1, 2024
This Managing Progression in Pulmonary Fibrosis fact sheet provides an understanding of progressive symptoms associated with pulmonary fibrosis and how to manage them. The resource also touches on planning for the future.
- Pirfenidone Fact SheetOctober 23, 2023
This resource is designed to help people living with pulmonary fibrosis to understand more about the antifibrotic medication Pirfenidone. It provides information on what this medication does, special precautions to follow, the side effects it may cause, and what monitoring you will require from your healthcare team.
- Influences of Air Quality on Lung HealthOctober 13, 2023
In this webinar, Professor Fay Johnston & Associate Professor Luke Knibbs provide insights into the effects of air quality on lung health.
- Mycophenolate Fact SheetOctober 2, 2023
This resource is designed to help people living with pulmonary fibrosis to understand more about the immunosuppressant medication, Mycophenolate (Cellcept, Myfortic). It provides information on what this medication does, special precautions to follow, the side effects it may cause, and what monitoring you will require from your healthcare team.
- Azathioprine Fact SheetOctober 2, 2023
This resource is designed to help people living with pulmonary fibrosis to understand more about the immunosuppressant medication Azathioprine (Imuran). It provides information on what this medication does, special precautions to follow, the side effects it may cause, and what monitoring you will require from your healthcare team.
- Nintedanib Fact SheetOctober 1, 2023
This resource is designed to help people living with pulmonary fibrosis to understand more about the antifibrotic medication, Nintedanib (Ofev). It provides information on what this medication does, special precautions to follow, the side effects it may cause, and what monitoring you will require from your healthcare team.
- Idiopathic Pulmonary Fibrosis: Understanding your diagnosisAugust 30, 2023
This fact sheet is for people who have just been diagnosed with idiopathic pulmonary fibrosis.
- Scleroderma and Interstitial Lung DiseaseJune 5, 2023
In this webinar, Dr Mathew Parker, Rheumatologist, and Dr Alan Teoh, Respiratory and Sleep Physician, along with patient Rossana Reyes, provided an overview of scleroderma and an insight into how to navigate the diagnosis and management of your condition, to get the most out of your treatment and care.
- Spotlight on Pulmonary Fibrosis ResearchMay 22, 2023
In this webinar, Prof Tamera Corte provided an exclusive update on the new Centre of Research Excellence in Pulmonary Fibrosis (CRE-PF), including an overview of the focus areas influencing pulmonary fibrosis research.Prof Dan Chambers and Prof Jo Dickinson joined to provide further insight into some of the latest research projects in pulmonary fibrosis, including genetic research, drug development and clinical trials.
- An Introduction to Hypersensitivity PneumonitisApril 28, 2023
In this webinar, Dr Hayley Barnes, Respiratory and Sleep Physician, and consumer advocate, Ted, provided an overview of hypersensitivity pneumonitis and an insight into how to navigate the diagnosis and management of your condition, to get the most out of your treatment and care
- Pulmonary Fibrosis – Lived Experience Panel WebinarOctober 5, 2022
In this webinar, a pulmonary fibrosis patient panel of Linda, Lawrie, Vivienne and John shared their learnings and inspiring stories of their journey with pulmonary fibrosis from diagnosis and treatment, including medication and oxygen, through to the pre and post lung transplant journey. A/Prof Lauren Troy joined to share her clinical knowledge and perspective on each of the topics.
- How Can Palliative Care Help You?September 5, 2022
This fact sheet contains information about the multidisciplinary approach to care for life-limiting, incurable disease, relevant to some types of pulmonary fibrosis.
- Cough and BreathlessnessSeptember 1, 2022
This booklet contains information about the causes of cough and breathlessness and how to help you manage these symptoms.
- An introduction to Connective Tissue Disease-associated Interstitial Lung DiseaseAugust 9, 2022
This webinar provides an overview of connective tissue disease-associated interstitial lung disease CTD-ILD and insight into how to navigate the diagnosis and management journey to get the most out of your treatment and care. Presented by Dr Adelle Jee, Respiratory and Sleep Physician and Tania, who is living with anti-synthetase syndrome.
- Living with Pulmonary Fibrosis – How Can Oxygen Therapy Help?July 1, 2022
This booklet has been designed to help people living with pulmonary fibrosis understand more about the use of oxygen therapy.
- Diet and Nutrition in Pulmonary FibrosisMarch 30, 2022
In this webinar, Accredited Practising Dietician, Christie Emsley, shares her expert knowledge on the role of diet and nutrition in the management of your lung condition, as well as how to manage medication side effects including weight loss and weight gain.
- Technology and Care in Pulmonary Fibrosis ManagementNovember 22, 2021
Presenters Dr Laura Glenn and Professor Anne Holland. Technology has changed our day-to-day lives in many ways. Now, more than ever we are connecting in with others and accessing services and medical care through technology. This webinar explores how technology plays an important role in the self-management of your lung condition, and include an insight into the Interstitial Lung Disease app.
- Non-pharmacological TreatmentNovember 1, 2021
This booklet contains information about therapies which are not medicine for people living with pulmonary fibrosis.
- Preparing for TravelNovember 1, 2021
This fact sheet contains information about preparing for travel for people living with pulmonary fibrosis.
- An Insight into the Impact of Idiopathic Pulmonary Fibrosis in AustraliaSeptember 8, 2021
This webinar provides an insight into the impact of idiopathic pulmonary fibrosis in Australia. View Prof. Haydn Walters, Dr Ingrid Cox and Dr Qiang Zheng as they provide an overview of the University of Tasmania’s research into the epidemiology of idiopathic pulmonary fibrosis, including key statistics and the impact of idiopathic pulmonary fibrosis in Australia.
- Lung Transplantation in Pulmonary FibrosisJune 10, 2021
Join Respiratory Physician Dr Jeremy Wrobel and Karen a person living with pulmonary fibrosis patient to learn more about lung transplantation in pulmonary fibrosis and its place in current treatment.
- Understanding Pulmonary Fibrosis Clinical TrialsMay 20, 2021
Presenter: Prof Dan Chambers. This webinar for consumers provides an insight into clinical trials to help gain an understanding of what it means to participate in research and a pulmonary fibrosis clinical trial.
- Updates on Treatment and Management for Pulmonary FibrosisOctober 27, 2020
Respiratory and Sleep Physician Dr Greg Keir provides an update on recent changes in treatment and management of pulmonary fibrosis.
- Understanding Palliative Care and Advance Care PlanningSeptember 10, 2020
Join Respiratory Physician A/Prof Nicole Goh to learn about palliative care and benefits of early engagement with this service.
- Managing Cough and Breathlessness in Pulmonary FibrosisJuly 14, 2020
In this comprehensive session, Amanda McAnulty, Senior Physiotherapist in pulmonary, cardiac and chronic disease rehabilitation, shares tips and advice for managing cough and breathlessness in pulmonary fibrosis.
- The Emotional Impact of Idiopathic Pulmonary FibrosisNovember 1, 2019
Presenter: Debra Sandford, Clinical Psychologist from the University of Adelaide and Royal Adelaide Hospital. Debra shares information regarding the emotional impact of IPF and the importance of taking care of your emotional wellbeing
- Self-Management and Pulmonary FibrosisNovember 1, 2019
Presenter: Dr John Mackintosh, Respiratory and Lung Transplant Physician at Prince Charles Hospital. This webinar features information on self-management, including guidance on lifestyle and symptom management. John, an IPF patient advocate, also shares his experience of managing day-to-day with IPF.
- Oxygen Therapy and Pulmonary FibrosisNovember 1, 2019
Presenter: Susanne Webster, Clinical Nurse Consultant, Royal Prince Alfred Hospital. This webinar features information on oxygen therapy, including starting on oxygen, tips for incorporating oxygen into your life and travelling with oxygen.
- Exercise and Pulmonary FibrosisOctober 3, 2018
Presenter: James Walsh, Clinical Consultant Physiotherapist from the Queensland Lung Transplant Service and Advanced Heart Failure and Cardiac Transplant Unit at the Prince Charles Hospital.James shared his knowledge to help develop a better understanding of exercising with this condition and the benefits of exercise for people living with pulmonary fibrosis.
- Life with Current Idiopathic Pulmonary Fibrosis Medications: The Benefits and Side EffectsJune 8, 2018
Presenters: Dr Gregory Keir and Bill Van Nierop.
- Exercise and Pulmonary Fibrosis
This fact sheet provides practical knowledge and information on how to incorporate regular exercise into your everyday life. The resource covers topics such as how to get started with exercise, pulmonary rehabilitation, exercising safely and tips for exercising with a lung condition.
- Lung Transplant and Interstitial Lung Disease (ILD)
This fact sheet provides an understanding of lung transplantation and information to support you through the different stages of the journey.
- Sarcoidosis of the Lung
This fact sheet provides an understanding of the causes, symptoms and diagnosis of sarcoidosis. The resource provides information to support people living with sarcoidosis through symptom management, as well as an overview of the treatments available for sarcoidosis.
- Scleroderma with Interstitial Lung Disease
This fact sheet contains information about the causes, symptoms, diagnosis, management and treatments available for Systemic Sclerosis-related Interstitial Lung Disease (SSc-ILD).
- Connective Tissue Disease-associated Interstitial Lung Disease (CTD-ILD)
This fact sheet provides an understanding of the causes, symptoms and diagnosis of CTD-ILD. The resource provides information to support with symptom management and provides an overview of the treatments available for CTD-ILD.
- Hypersensitivity Pneumonitis
This fact sheet contains information about the causes, symptoms, diagnosis, management and treatments available for hypersensitivity pneumonitis.
- Pulmonary Fibrosis Peer Connect Service
The PF Peer Connect service, which is run by Lung Foundation Australia, matches people living with pulmonary fibrosis and their carers with someone going through a similar experience.
- Pulmonary Fibrosis Support Groups
Support groups run by Lung Foundation Australia bring people with similar experiences together to help each other cope with challenges and encourage each other to live the best life possible.