Pulmonary Fibrosis Awareness Month 2025
Pulmonary Fibrosis Awareness Month is a global campaign to boost understanding about pulmonary fibrosis, its symptoms, and the sources of information available to support those impacted.Ā
During September the CRE-PF will mark world Pulmonary Fibrosis Awareness Month with a campaign focused on amplifying patient experiences of diagnosis, and the important role GPs have in early detection.
Thousands of Australians are living with pulmonary fibrosis and despite its significant impact, awareness about this incurable condition remains low.
“I was lucky, I had fast access to medication and the support to understand how to manage my condition…Iām so grateful to the research community, it gives me hope, not just for better treatments, but maybe even a cure one day.”
– Deb Murray, Lives Well With Pulmonary Fibrosis
CRE-PF Pulmonary Fibrosis Awareness Month Activities
- Magnifying the voices of pulmonary fibrosis patients, with a series of short films highlighting their journey to diagnosis and what its like to live with pulmonary fibrosis.
- Sharing healthcare professional perspectives on the importance of early diagnosis.
- Creation of a downloadable resource kit, which includes education resources, case studies and short clips about pulmonary fibrosis by CRE-PF healthcare professionals.Ā
- Webinars aimed at GPs and respiratory specialists featuring A/Professor Nicole Goh (CRE-PF Investigator)
- Contributions via peer-reviewed articles in Respiratory Medicine Today and MJA InSightĀ to highlight the important role of GPs in early diagnosis of pulmonary fibrosis.
- Working with media to amplifying the impact of pulmonary fibrosis and showcase the ways Australian research is making a difference for people living with this disease.
Leading clinicians and people with lived experience of pulmonary fibrosis are joining forces to push one urgent message: early diagnosis saves lives.
“The earlier we diagnose pulmonary fibrosis the sooner we can offer treatments to slow the disease and help people maintain their quality of life”
– A/Professor Nicole Goh, Lung Specialist
“We’ve been greatly affected by this disease as my mum and aunt both passed away from idiopathic pulmonary fibrosis. We can all do our bit to increase awareness and support research for a cure”
– Ben Harper, Family History of Pulmonary Fibrosis
“People with pulmonary fibrosis often present to their GP with cough and breathlessness several times, up to 10 years before diagnosis”
– Professor Tamera Corte, Respiratory Specialist
“Yearly check-ups are crucial. Talk to your GP if you have any symptoms. Listen to your body, and your loved ones when they express concern. early detection can change everything”
– David Hood, Lung Transplant Recipient