General Information

  1. Life with Pulmonary Fibrosis – Vietnamese
    November 19, 2024

    This is a Vietnamese translation of our booklet Life with Pulmonary Fibrosis. It contains information for people who have been diagnosed with pulmonary fibrosis as well as their carers.

  2. Life with Pulmonary Fibrosis – Arabic
    November 19, 2024

    This is an Arabic translation of our booklet Life with Pulmonary Fibrosis. It contains information for people who have been diagnosed with pulmonary fibrosis as well as their carers.

  3. Life with Pulmonary Fibrosis – Simplified Chinese
    November 19, 2024

    This is a Simplified Chinese translation of our booklet Life with Pulmonary Fibrosis. It contains information for people who have been diagnosed with pulmonary fibrosis as well as their carers.

  4. Partnering With Your Pulmonary Fibrosis Healthcare Team
    September 30, 2024

    This webinar explores the role of healthcare professionals in managing pulmonary fibrosis and offers practical insights into care coordination, symptom management, and maintaining communication with specialists.

  5. What is Pulmonary Fibrosis/Interstitial Lung Disease? Disease Pathways and Treatments
    August 16, 2024

    This webinar provides a detailed overview of pulmonary fibrosis and interstitial lung disease.

  6. Research and Latest Developments: What’s on the Horizon for Pulmonary Fibrosis
    August 16, 2024

    This webinar provides discusses the latest research and developments in pulmonary fibrosis and interstitial lung disease.

  7. Navigating Life with Pulmonary Fibrosis/Interstitial Lung Disease – Panel
    August 16, 2024

    A panel of clinicians and consumers discuss how to maintain hope while living with pulmonary fibrosis and interstitial lung disease.

  8. Life with Pulmonary Fibrosis
    June 30, 2024

    This booklet contains information for people who have been diagnosed with pulmonary fibrosis and their carers.

  9. Influences of Air Quality on Lung Health
    October 13, 2023

    This webinar provide insights into the effects of air quality on lung health.

  10. Spotlight on Pulmonary Fibrosis Research
    May 22, 2023

    In this webinar learn about the Centre of Research Excellence in Pulmonary Fibrosis (CRE-PF), including an overview of the focus areas influencing pulmonary fibrosis research. Also updates on research projects in pulmonary fibrosis, including genetic research, drug development and clinical trials.

  11. Pulmonary Fibrosis – Lived Experience Panel Webinar
    October 5, 2022

    In this webinar, a pulmonary fibrosis patient panel of Linda, Lawrie, Vivienne and John shared their learnings and inspiring stories of their journey with pulmonary fibrosis from diagnosis and treatment, including medication and oxygen, through to the pre and post lung transplant journey. A/Prof Lauren Troy joined to share her clinical knowledge and perspective on each of the topics. 

  12. Cough and Breathlessness
    September 1, 2022

    This booklet contains information about the causes of cough and breathlessness and how to help you manage these symptoms.

  13. Technology and Care in Pulmonary Fibrosis Management
    November 22, 2021

    Presenters Dr Laura Glenn and Professor Anne Holland. Technology has changed our day-to-day lives in many ways. Now, more than ever we are connecting in with others and accessing services and medical care through technology. This webinar explores how technology plays an important role in the self-management of your lung condition, and include an insight into the Interstitial Lung Disease app.

  14. Preparing for Travel
    November 1, 2021

    This fact sheet contains information about preparing for travel for people living with pulmonary fibrosis.

  15. An Insight into the Impact of Idiopathic Pulmonary Fibrosis in Australia
    September 8, 2021

    This webinar provides an insight into the impact of idiopathic pulmonary fibrosis in Australia. View Prof. Haydn Walters, Dr Ingrid Cox and Dr Qiang Zheng as they provide an overview of the University of Tasmania’s research into the epidemiology of idiopathic pulmonary fibrosis, including key statistics and the impact of idiopathic pulmonary fibrosis in Australia.

  16. Understanding Pulmonary Fibrosis Clinical Trials
    May 20, 2021

    Presenter: Prof Dan Chambers. This webinar for consumers provides an insight into clinical trials to help gain an understanding of what it means to participate in research and a pulmonary fibrosis clinical trial.

  17. The Emotional Impact of Idiopathic Pulmonary Fibrosis
    November 1, 2019

    Presenter: Debra Sandford, Clinical Psychologist from the University of Adelaide and Royal Adelaide Hospital. Debra shares information regarding the emotional impact of IPF and the importance of taking care of your emotional wellbeing

  18. Self-Management and Pulmonary Fibrosis
    November 1, 2019

    Presenter: Dr John Mackintosh, Respiratory and Lung Transplant Physician at Prince Charles Hospital. This webinar features information on self-management, including guidance on lifestyle and symptom management. John, an IPF patient advocate, also shares his experience of managing day-to-day with IPF.

  19. Exercise and Pulmonary Fibrosis
    October 3, 2018

    Presenter: James Walsh, Clinical Consultant Physiotherapist from the Queensland Lung Transplant Service and Advanced Heart Failure and Cardiac Transplant Unit at the Prince Charles Hospital.James shared his knowledge to help develop a better understanding of exercising with this condition and the benefits of exercise for people living with pulmonary fibrosis.

  20. Exercise and Pulmonary Fibrosis

    This fact sheet provides practical knowledge and information on how to incorporate regular exercise into your everyday life. The resource covers topics such as how to get started with exercise, pulmonary rehabilitation, exercising safely and tips for exercising with a lung condition.