The primary purpose of the Australasian Interstitial Lung Disease Nurses Alliance (ALINA) is to shape the future of ILD nursing in Australasia.
This webpage is intended for sharing curated resources, to support our professional practice and best serve patients with ILD.
These resources have been curated by the ALINA steering group. They are curated by nurses for nurses. Please note this is not an exhaustive list of relevant references, we welcome your feedback or suggested contributions. Please contact us here.
ILD Nurse Foundations
Idiopathic Pulmonary Fibrosis journal article from The New England Journal of Medicine.
Interstitial lung diseases: never forget to think about it in primary care journal article from Expert Review of Respiratory Medicine.
Interstitial Lung Disease for Health Professionals webpages from Lung Foundation Australia.
New Hope for Interstitial Lung Disease journal article from Medicine Today.
Nonpharmacological Therapies for Interstitial Lung Disease manuscript from Current Pulmonary Reports.
Pulmonary Fibrosis General Information webpages from the Pulmonary Fibrosis Foundation.
Spectrum of Fibrotic Lung Diseases journal article from The New England Journal of Medicine.
Specialised ILD Nurse Knowledge
Australian Position Statements for the Diagnosis & Treatment of ILD from the Thoracic Society of Australia and New Zealand.
Clinical practice guidelines for connective tissue disease associated with ILD from the European Respiratory Society.
Clinical impact of an interstitial lung disease nurse on patients with idiopathic pulmonary fibrosis journal article from the European Respiratory Journal.
Contemporary challenges for specialist nursing in interstitial lung disease journal article from the European Respiratory Society.
Evaluation of the current landscape of respiratory nurse specialists in the UK: planning for the future needs of patients journal article from BMJ Open Respiratory Research.
Impact of an interstitial lung diseases Nurse on the compliance to anti-fibrotic drugs in patients with Idiopathic Pulmonary Fibrosis journal article from the European Respiratory Journal.
ISHLT consensus statement on short telomere syndrome and lung transplantation journal article from Heart Lung Transplant.
Management of the idiopathic interstitial pneumonias journal article from the Australian Prescriber.
Official ILD Documents from the American Thoracic Society.
Openreuma Consensus on the role of nursing in the care of patients with rheumatoid arthritis and diffuse interstitial lung disease journal article from Investigacion y Educacion en Enfermeria.
Palliative care in Interstitial Lung Disease: living well journal article from The Lancet. Respiratory Medicine.
Real World Experience: Impact of a Specialist Interstitial Lung Disease Nurse on Health Care Utilization scientific letter from the Open Respiratory Archives
ILD Services
Assessing the impact of a dedicated advanced nurse practitioner on a complex ILD service journal article from the European Respiratory Society.
Defining nurse-led models of care: Contemporary approaches to nursing journal article from the International Nursing Review.
Essential Components of an ILD Clinic journal article from Chest.
Essential Features of an Interstitial Lung Disease Multidisciplinary Meeting: An International Delphi Survey journal article from the American Thoracic Society.
Idiopathic pulmonary fibrosis: the role of the respiratory advanced nurse practitioner journal article from the British Journal of Nursing.
Securing funding for ILD nurse specialists a case study from the British Thoracic Society.
Nurse Led Research
A scoping review of unmet needs of caregivers of patients with pulmonary fibrosis journal article from Current Opinion in Supportive and Palliative Care.
Daily Home Spirometry: An effective tool for detecting progression in Idiopathic Pulmonary Fibrosis journal article from American Journal of Respiratory and Critical Care Medicine.
Effectiveness of Nurse Led Advance Care Planning Intervention for Chronic Respiratory Diseases: A Meta‐Analysis journal article from Nursing Open.
Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners journal article from Heart & Lung: The Journal of Cardiopulmonary and Acute Care.
Interstitial Lung Disease Fatigue and Breathlessness (ILD-FAB) Programme: A multidisciplinary feasibility study pre-print available from medRxiv.
Nurse-Led Palliative Care Clinical Trial Improves Knowledge and Preparedness in Caregivers of Patients with Idiopathic Pulmonary Fibrosis journal article from the Annals of the American Thoracic Society.
Palliative Care and Location of Death in Decedents with Idiopathic Pulmonary Fibrosis journal article from CHEST.
Patient-reported experience measure (PREM) for patients with interstitial lung disease (ILD): modification of a pre-existing measure journal article from BMJ Open Respiratory Research.
Patient perspectives on home-spirometry in interstitial lung disease: a qualitative co-designed study journal article from BMJ Open Respiratory Research.
Perceptions, experiences and needs of patients with Idiopathic Pulmonary Fibrosis journal article from the Journal of Advanced Nursing.
Pulmonologists’ Perspectives on and Access to Palliative Care for Patients With Idiopathic Pulmonary Fibrosis in South Carolina journal article from Sage Journals.
Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients’ perspectives of the disease and treatment journal article from BMC Pulmonary Medicine – Springer Nature Link.
Randomised clinical trial of an early palliative care intervention (SUPPORT) for patients with idiopathic pulmonary fibrosis and their caregivers: protocol and key design considerations journal article from BMJ Open Respiratory Journals.
Referral to Palliative Care Infrequent in Patients with Idiopathic Pulmonary Fibrosis Admitted to an Intensive Care Unit journal article from Sage Journals.
The impact of air pollution on interstitial lung disease: a systematic review and meta-analysis journal article from Frontiers in Medicine.
The palliative care needs of patients with idiopathic pulmonary fibrosis: A qualitative study of patients and family caregivers journal article from Heart & Lung: The Journal of Cardiopulmonary and Acute Care.
The value of a specialist nurse-lead interstitial lung disease clinic, patients’ views journal article from the European Respiratory Journal.
Professional Development for ILD Nurses
Clinical Trials
PACT Network The Pulmonary Fibrosis Australasian Clinical Trials (PACT) Network provides information on current Australasian clinical trials in PF. A full list can be found at PF Australasian Clinical Trials (PACT) – Find a Trial.
New to ILD clinical trials or seeking guidance? The ALINA Steering Committee is here to support you and can provide advice across all stages of clinical trial set-up, implementation, and ongoing management. For nurses new to clinical research, we recommend completing the free ACTEC Trial Essentials course to build a strong foundational knowledge. Please don’t hesitate to reach out for expert advice and mentorship.
For Your Patients
Explanation of Pulmonary Fibrosis
Australian Pulmonary Fibrosis Patient Educational Resources – booklets, fact sheets and webinars
PF Information for Patients webpages from Lung Foundation Australia
Pulmonary Fibrosis Australasian Clinical Trials Network (PACT) webpages
Pulmonary Rehabilitation webpages from Lung Foundation Australia
Support Groups – Australian