Improving Individualised Supportive Care
Leads: Prof Anne Holland and A/Prof Natasha Smallwood
People with pulmonary fibrosis experience distressing, progressive symptoms including breathlessness, coughing and fatigue. Unmet needs for symptom management and supportive care have not changed substantially despite the advent of anti-fibrotic therapy in 2017.
- We are translating the outcomes of symptom-based clinical trials into practice
- We are developing a self-management package for people with pulmonary fibrosis.
- We are defining attitudes to symptom palliation and supportive care.