Patient Education
One of the greatest needs expressed by people living with pulmonary fibrosis is for honest, understandable and disease-specific information about what the future might hold.
Therefore, one of the main aims of the CRE-PF is to develop and maintain educational and support resources for patients and community partners.
We have achieved this in partnership with Lung Foundation Australia, through working together to promote the important role of the patient in managing pulmonary fibrosis.
Resources available include booklets, fact sheets and webinars. These education and support resources are available for your patients to download here.
Additional resources and information are available on the Lung Foundation Australia website.
Patient Support
We also partner with Lung Foundation Australia to deliver information and support options for your patients, including peer to peer connections through the PF Peer Connect service and support groups.
We developed the PF Peer Connect service to meet the expressed support needs of people with pulmonary fibrosis. This service, unique in the world, facilitates peer support for people with pulmonary fibrosis wherever they are located in Australia and has been so successful that the model is now used for support programs in other lung conditions.
The PF Peer Connect service has been evaluated by the TEDS team and results published.