About
My name is Bob Machar and I am a retired school teacher – have been so since 2010. I live on Sydney’s northern beaches. I am married to Vicky and have 2 sons – one lives locally and one in Zurich (he married a German girl). We have 5 granddaughters.
I was diagnosed with IPF in 2014, after presenting to my GP with a persistent cough. The first specialist I saw said I had maybe 3 years, and should look at getting affairs in order – was a bit of a shock to all. Ended up going to RPA, and can’t speak highly enough of the help and support I have received from all the staff there. I took part in an early drug trial and on completion of that, started on the drug Nintedanib.
Since then I have been pretty stable and am able to lead a very normal life (apart from some side effects of drug). Have recently started a new drug trial with RPA, because I feel I want to give something back for all the support I have had from them. More side effects but not the end of the world. Reason for opting to join this group same as above – would like to give something back – not sure what, but hope I can offer something.