About
I’m Brendan, currently 39 years old as of writing this in February 2024.
I have lived up and down the eastern side of Australia starting in Canberra, then Brisbane, moved to Melbourne to study now have settled in Albury with my wife Julia, child Winston, labrador, and two cats. I work as an Osteopath and am currently setting up my clinic in a residential area.
I was diagnosed in May 2023 on a personal hunch, my GP and a friend advised that I had some bi-basilar crackling in my left inferior lobe, he believed that this was a side effect of stress and Covid, however, I pushed for a CT and as a result they found fibrotic tissue with honeycombing. I’ve been told I have a very rare form of PF which is a side effect of a blood condition called hermansky-Pudlak syndrome (HPS). At this present moment, I’m the only one in Australia who has been diagnosed with this form of HPS PF.
Due to the nature of this disease, I’m hoping to get involved as much as I can with research and the community to try and help everyone who has been directly or indirectly effected by this insidious disease.