Facing the Future with a Family History of Pulmonary Fibrosis

Ben lost his mum and his auntie to idiopathic pulmonary fibrosis (IPF). IPF can be hereditary and this has left Ben and his family with a degree of uncertainty about the future.

While there is no genetic test to predict who will develop IPF, knowing your family history and acting early can improve outcomes.

Download Ben’s story.

Visit our dedicated Pulmonary Fibrosis Awareness Month page to view more stories, download our 2025 Awareness Resources Kit and learn more about what’s happening this month.

Pulmonary Fibrosis Institute

The Centre of Research Excellence in Pulmonary Fibrosis has established the Pulmonary Fibrosis Institute, a not-for-profit company registered in Australia. The Pulmonary Fibrosis Institute exists to support ongoing research into pulmonary fibrosis and ensure the longevity of research infrastructure developed through our collaborative efforts.